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Based in Llandough Hospital, the All Wales Adult Cystic Fibrosis Centre has dedicated beds including one ring-fenced en-suite room, which was funded through the hospital’s Better Life Appeal.
CF is the UK’s most common, inherited, life-threatening disease. It is a progressive condition in which the glands that produce mucus, sweat and intestinal secretions do not function properly.
The severity of symptoms varies, but there is no cure. Supportive treatments are available to help improve quality of life and average life expectancy has increased over the years.
Since 2005 accommodation for the specialist nurses and research nurse, an out patient physiotherapy room, two outpatient treatment rooms, a psychology room and a patient gym have all been added to the unit.
The patient gym provides individualised exercise programmes to be used in conjunction with physiotherapy. Pre-transplant exercise sessions can be organised to ensure all patients on the active transplant waiting list are of optimal fitness in preparation. And post-transplant exercise programmes are developed to regain fitness lost during the post transplantation recovery.
There are also clinical outpatient treatment rooms and a physiotherapy outpatient treatment room. The unit’s psychology consultation room allows patients to be seen in a more relaxed and calm setting, more suited to the needs of the patient.
Dr Ian Ketchell, Lead Consultant for Cystic Fibrosis said:
"We were delighted the Minister for Health and Social Services took the time to visit the Cystic Fibrosis Unit at University Hospital Llandough. The Minister had a tour of the facility and met staff and patients including Kevin Clements, who is recovering from a very successful lung transplant.
"It was a great opportunity for us to show the quality of care we deliver and the positive impact this has on patients. We are looking forward to building on our success in the future"
Health Minister Lesley Griffiths said:
"The invaluable work carried out by Dr Ian Ketchell, Director of the All Wales Adult Cystic Fibrosis Centre and his highly specialised staff, improves the lives of hundreds of people.
"Cystic Fibrosis is a life limiting condition but with the right treatment and care, I am delighted we are seeing people live longer with an improved quality of life.
"The Service Development and Commissioning Directives for chronic respiratory conditions set out the Welsh Government’s policy position for respiratory services, including cystic fibrosis, in Wales. Through their joint work on Welsh Health Specialised Services (WHSSC) the health boards continue to meet the requirements set out to ensure that people with cystic fibrosis receive the right services at the right time in the right place and by the right person to support their independence in all areas of life."
